Resources
This is a list of websites and print articles which feature information on care, end of life and associated subjects. For reference only; entries should not be considered recommendations.
Access To Communication And Technology (ACT) Service - Birmingham Community Healthcare NHS Trust
ALISON - Advanced Learning Interactive Systems Online
Anni's Cancer Companion - Anni Matthews
Basic resources in death and bereavement
BBC News - 'UK comes top on end of life care - report'
BBC Radio 4, The Today Programme - Sir Michael Parkinson on the lack of dignity in care for the elderly (audio clip broadcast at 0820, 12/1/10)
Because Cowards Get Cancer Too
Benefits and Work - Get the benefits you're entitled to
Bereavement Services Association
Books on Prescription - NHS do-it-yourself therapy
Brake - The Road Safety Charity
Camden City Islington and Westminster Bereavement Service
Camden Council - Contacts for Bereavement
Camden and Islington Palliative Care Centre
Camden and Islington - SLOW: Surviving the Loss of Your World
Camden and Islington - Traumatic Stress Clinic
Cancer from Cure to Care - Jeffrey, Hochland & Hochland Ltd 2000
Capacitar International - A network connecting people in 5 world area: the Americas, Africa, Europe, the Middle East and Asia; a core program of energy-based healing practices that awaken and empower people. Teams, coordinating groups and multipliers in over 35 countries.
Caregiver’s Guide - A handbook about end-of-life care.
Karen Macmillan, Jane Hopkinson, Jacquie Peden, Dennie Hycha
The Carer’s Handbook – Matthews, How to Books 2007
Caring at Home – Kohner, Cambridge National Extension College 1992
Caring for the Dying at Home – Thomas, Radcliffe Medical Press Ltd 2002
Caring for Someone at Home - Elkington and Harrison, Hodder & Stoughton 1999
Caring with Confidence resources
Centre for Death and Society - List of past conferences with downloadable resources
Chest - A Practical Approach to the Family that Expects a Miracle
Charity Checkout - CharityCheckout is a payment provider for small charities offering recurring donations, custom payment pages and Gift Aid admin support
Chronic and Terminal Illness - Paynes and Ellis-Hill, Oxford University Press 2001
Communicating with Dying People and Their Relatives – Lugton, Radcliffe Medical Press Ltd 2002
Community Fundraising: The Effective Use of Volunteer Networks - Harry Brown ISBN-1-900360-95-5
The Complete Funding Handbook - Botting, Nina, and Michael Norton, ISBN-1-903991-026-9
Corporate Fundraising - Valerie Morton, ISBN-1903991-00-5
Counsel and Care - Advise and Information for older people, their families and carers.
Crossing Over - Barnard, Towers, Boston and Lambrinidou, Oxford University Press 2000
Cruse Bereavement Care - North London Branch
Consumer Credit Counselling Service: www.cccs.co.uk
Deadman Writing Author – Jonathan Wilson ISBN 0-9543338-0-2
Dialogues in Dying End of Life Care - NHS DVD / University of Birmingham /Pan Birmingham
The Dignity in Care Network - The Dignity Ambassador & Ministerial Support, Michael Parkinson
Direct Gov Caring and Support Services home
Directory of American Grant-makers 2002, Chapel and New York
Directory of Grant-makers’ Websites (CD-ROM) , Chapel and York
Directory of Grant Making Trusts 2003-4, Published in association with CAF ISBN-1-903991-33-1
Don't Take Away Our DLA - Video
Dying End of Life Care - NHS / University of Birmingham /Pan Birmingham
Dying to Know- Bringing death to life – Author Andrew Anastasios ISBN 9781740665537
Dying Well – A holistic guide for the dying and their carers. Richard Reoch. ISBN 1-85675-019-1
The Empty Room - Understanding Sibling Loss – Elizabeth De Vita-Raeburn, ISBN-13-978-0-7432-0152-0
The Educational Grants Directory 2002/03 - Alan French, Dave Griffiths, Tom Traynor and Sarah Wiggins ISBN-1-903991-26-9
Elizabeth Kubler-Ross Foundation
End of Life Care 2009 Vol. 3 No.4
End of Life Care Patient Charter 2011 Accompanying Letter
Essential Guide for Disabled People
EvoAssist - Assistive environment technology apps for Apple iPad and iPhone
Expert Patients Programme - Self Management Courses
Expert Patients Programme - Self Management for Life
Face to Face with Cancer - Practical Information for Patients and their Families - Marion Stroud ISBN 0-867-60818-8, Lion Publishing plc 1988
Facing Death (Patients, Families and Professionals) Author – Averil Stedeford ISBN 0-433-31550-4
Fast Tomato – Control Your Future
Finding Company Sponsors for Good Causes - Chris Wells, ISBN-1-900360-31-3
Find the Funds: A New Approach to Fundraising Research – Christopher Camie, ISBN-1-900360-54-3
Fish! A Remarkable Way to Boost Morale and Improve Results - Stephen C Lundin, Harry Paul and John Christensen, ISBN-0-340819-80-4
Fundraising from America, Chapel and York
Fundraising Strategy - Redmond Mullin, ISBN-1-903991-22-6
Gem Centre for Children and Young People - Wolverhampton
Give As You Live - Thousands of stores will donate money to your favourite charity when you shop online
The Guardian - 'Michael Parkinson says care of elderly 'downright unacceptable''
Guide des Aidants Naturels - Macmillan, Peden, Hopkinson and Hycha, Canadian Hospice Palliative Care Association
A Guide to European Union Funding for the Voluntary Sector - Peter Sluiter and Laurence Wattier, ISBN-1-900360-50-0
A Guide to Funding from Government Departments and Agencies - Susan Forrestor and Anthony Stenson ISBN-1-900360-79-9
A Guide to Grants for Individuals in Need - Alan French, Dave Griffiths, Tom Traynor and Sarah Wiggins, ISBN-1-903991-25-0
A Guide to Local Trusts in the Midlands – Dave Griffiths, ISBN-903991-05-6
A Guide to the Major Trusts (vol. 1) - Luke Fitzherbert, and Jo Wickens, ISBN-1-903991-27-7
A Guide to the Major Trusts (vol. 2) - Dave Griffiths, Alan French and Tom Traynor, ISBN-1-903991-31-5
A Guide to the Major Trusts (vol. 3) - Sarah Wiggins, ISBN-903991-03-X
The Guide to UK Company Giving - John Smith, ISBN-1-9039991-02-1
Health and Social Care - Burgess, Pritchatt and Shaw, Heineman 2007
'Health Promoting Palliative Care' - European Journal of Palliative Care, Haraldsdottir, Clark & Murry, Vol.17(3) 2010 pp130-132
The Heart of Long-term Care - Kane, Kane and Ladd, Oxford University Press 1998
How to Understand the Stages of Death and Dying
How we Treat the Sick: Neglect and Abuse in Our Health Services - Michael Mandelstam
Improving Care for the End of Life - Lynn, Shuster and Kabcenell, Oxford University Press 2000
Influencing the new health system in the local area - This briefing, produced jointly by the National Association for Voluntary and Community Action (NAVCA), the National Council for Voluntary Organisations (NVCO) and Regional Voices, aims to help local voluntary and community organisations navigate their way through the NHS reforms.
Inside Palliative Care 2009 Vol. 10
Inside Palliative Care 2010 Vol. 11
In Your Own Time – A guide for patients and their carers facing a last illness at home
Author – Elizabeth Lee ISBN – 0-19-850975-8
It’s Not the End of the World – Judy Blume
It’s Not Your Fault - What to Do When Your Parents Divorce - Rosemary Stories
It's Your Practice - A Patient Guide to GP Services
KevinMND.com - Embracing Different Cultures in the Service of Dying
Learning to Live with Multiple Sclerosis - Povey, Dowe and Prett, Sheldon Press 1997
Lesbian and Gay Bereavement Project
'Letter to Obama from a Dying Friend' - Paul Loeb, Huffington Post, July 2nd 2009
Letting Go - What Should Medicine Do When it Can't Save Your Life?
LifeInsurance.org - Making End of Life Decisions
Life Story Network - This independent online national network has been developed by people with a passion for life story work to create further discussion and sharing of positive practice in the use of life stories, locally, nationally and internationally.
Living On After a Death: Resources for Survivors
Living with Death (The Guardian) - What's it like to know that you are dying?
A Long Walk Home – Clarke, Radcliffe Medical Press 2002
Marketing Strategy for Effective Fundraising - Peter Maple, ISBN-1-903991-38-2
Mayo Clinic – Resources on Death and Dying
Me and Ms. Fat – Carter, Bear Press
Medline Plus - End of Life Issues
Medpedia - An open platform connecting people and information to advance medicine
Mesothelioma Resource Online - support and information site for this rare form of cancer caused by exposure to asbestos
MNDA - Motor Neurone Disease Association
MND (Motor Neurone Disease) Scotland - Communicating Top Tips
National Association of Widows
National Benevolent Fund for the Aged
Support services include 'Breaks Away'; free holidays for older people on low incomes
National end of life care programme
NCPC - Benchmarking Analysis Nov 09
NCPC - Planning Mar 2009
NCPC - The Power of Partnership Dec 09
NHS Choices - How to Find Local Carer Services
NHS Choices Links Library - Over 1000 links to useful services
NHS Choices Links Library - Carers Links
NHS Islington - Life Force: Palliative care and bereavement services for children
No Regrets (DVD) – Amanda Waring
NSJ 2006 Anniversary Supplement
On Death and Dying - E Kubler-Ross, Routledge 1973, ISBN-0415040159
Organising Special Events for Fundraising and Campaigning - John F Gray and Stephen Elsden, ISBN-1-900360-56-X
Outsiders - "Outsiders welcomes people with physical and social disabilities to join our club, make new friends and, if they wish, find partners."
The Oxford Book of Death – Editor D. J. Enright ISBN 978-0-19-955652-6
PACC - Parent and Carer Council, Shropshire
Paediatric Palliative Care Guidelines 2nd Edition - Lidstone, Delaney, Hain and Jassel, 2005
Pain Toolkit - PDF guide of tips for people who live with persistent pain
Palliative Care in the Home - Doyle and Jeffrey, Oxford University Press 2000
Palliative Medicine – Walsh, Saunders Elsevier 2009
Palliative Medicine 2009 Vol. 23 No. 4
Palliative Medicine 2009 Vol. 23 No. 6
Parent Problems! Children’s Views on Life When Parents Split Up - Bren Neale and Amanda Wade
Planning Together - The Art of Effective Teamwork – George Gawlinski, and Lois Graessie, ISBN-0-9528557-1-5
Poems and Readings for Funerals – Watson, Penguin 2004
Primary Palliative Care – Charlton, Radcliffe Medical Press Ltd 2002
Promoting Your Cause - A Guide for Fundraisers and Campaigners - Ken Gilchrist, ISBN-1-900360-95-0
Psychosocial Support for Dying People - Shipman, Levenson and Gillam, King’s Fund 2002
QISMET - Quality Institute for Self Management Education and Training
- Download Introductory Leaflet
Relationship Funding: A Donor-based Approach to the Business of Raising Money – Ken Bumett, ISBN-07879-6089-6
Radnorshire Healthy Friendships
Regional Disability Network – West Midlands
Relative and Residents Association - For quality of life of older people in care
Resources on End-of-Life Ethics and Decision Making - Santa Clara University
Respond - Disability discrimination support
Rethink - your right to request a carers assessment
Safe Haven: Transforming Relatives Room Nursing Times 107:5 16-18 - Bird S et al 2011
Sands - Stillbirth and neo-natal death charity
The Schools Funding Guide – Nicola Eastwood, and Anne Mountfield and Louise Walker, ISBN-1-900360-49-7
The Secret C – Straight talking about cancer. Author – Julie A. Stokes ISBN 0-9539123-0-2
Self Care Toolkit - PDF guide of tips for people who live with persistent health problems
Society of Bereavement Practitioners
SpeechBubble - Technology that Gives You a Voice
Spirituality and Alternative Healing
Spirituality in End of Life Care
The Sports Funding Guide – Nicola Eastwood, ISBN-1-900360-49-7
Statistics. Gov – National Statistics Carers 2000
Stillborn and Neonatal Death Charity
Support After Murder or Manslaughter
Supporting Carers - An Action Guide for General Practitioners and Their Teams (2nd Edition)
Supporting lay carers in end of life care: current gaps and future priorities –
G Grande et al, Palliative Medicine: Research journal of the European Association for Palliative Care vol.23 no.4 June 2009. ISSN 0269-2163
Taking Care (The Guardian) - What is it like to be a carer?
Teaching Palliative Care - Jeffrey, Radcliffe Medical Press 2002
The Telegraph - 'Michael Parkinson Fights for Dignity in Care Homes'
Tried and Tested Ideas for Raising Money Locally – Sarah Passingham, ISBN-1-903991-37-4
Traumatic Stress Clinic – Camden and Islington
True Vision: Disability Hate Crime
Turn 2 Us - Ask an Expert Advice on benefits, grants and managing money
Visions, Trips And Crowded Rooms: Who and What You See Before You Die by David Kessler
The Welsh Funding Guide – Dave Casson, ISBN-1-903991-35-8
We need to talk About the Funeral - Morrell and Smith, Alphabet and Image Books 2006
What Dying People Want – Kuhl, Public Affairs 2002
What Happens When You Die? - Article by Dr Robert Lanza MD
What is Death? - Article by Dr Robert Lanza MD
Where there is no Doctor – Werner, Macmillan Publishers Ltd 2004
Where to Look for Help - Brian McConville, ISBN-1-871504392
Winston’s Wish 2000
Writing Better Fundraising Applications - Michael Norton and Mike Eastwood, ISBN-1-903991-09-9
Your way through the Labyrinth - A Guide to European Union Funding for NGOs, Published by ECAS, ISBN-2-9600280-2-3
The Youth Funding Guide – Nicola Eastwood, ISBN-1-900360-96-9
