
No life of my own say the UK's carers
More than three-quarters (76%) of people looking after an ill, frail or disabled loved one do not have a life outside of their caring role, according to new research issued to launch Carers Week. The results show that huge numbers of carers are left isolated and lonely, missing out on opportunities that the rest of the population takes for granted. 80% have been forced to give up leisure activities or from going out socially since becoming a carer.
The majority of those surveyed can no longer rely on relatives for support either, as these relationships have suffered as a result of caring – 75% say they have lost touch with family and friends. One of the carers who took part in the survey was Theresa from Glasgow. She cares for 3 people – her 2 sons, one of whom has Down’s Syndrome, and her registered blind mother. She balances full-time work with caring, Theresa says: “A life of my own is a daydream. Caring demands are relentless, and costs you your health, relationships and happiness. To have a life of my own, for just one day would be marvellous.”
Carers say they simply exist, are marginalised and invisible. Unable to socialise, to have romantic relationships, or even to consider having children, the impact on carers is emotional, mental, physical, and fiscal. 4 out of every 5 carers say they’re worse off financially, while more than half (54%) say they’ve had to give up work. Despite saving the UK economy £87 billion annually by relieving pressure on health and social services, carers are not being supported in the vital role they play for both their communities and society at large.
Almost all carers questioned agreed a life of their own would be achievable if they received breaks, a decent income and were given support in times of crisis. Carers need and deserve change. Better access to advice and information, improved funding for breaks, and support and flexibility for carers at the workplace are all needed urgently. Only then will carers get a real chance at a life of their own, and the opportunity to do some of the things that the rest of us take for granted.
In the responses to the survey carers have consistently highlighted what they need to have a life of their own, especially:
- Access to relevant and practical information, to help them with their caring role
- The opportunity to take a break when they need it
- Support at times of crisis
- Financial support
3,282 carers took part in the survey, both online and by post, which was carried out by Carers Week between 18 February – 7 April 2010. 65% of those surveyed were heavy-end carers, responsible for 50+ hours of care each week.
From carersweek.org, Tuesday June 15th 2010. To view the original article, click here.
End of life care is an emotive subject. Omega feels passionately about raising standards in end of life care and encourages debate. We believe it is important to share a range of opinions on all aspects of end of life care, although we do not share all the opinions expressed on our news page.

